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Showing posts with label Journal of the American Medical Association Pediatrics (JAMA). Show all posts
Showing posts with label Journal of the American Medical Association Pediatrics (JAMA). Show all posts

Friday, August 23, 2024

What is a nonverbal learning disorder? Tim Walz’s son Gus’ condition, explained

Friends:

It's really sad and disgusting to learn that Ann Coulter publicly mocked Tim Walz's son in a now-deleted Tweet, calling him "weird." Specifically, Tim Walz son, Gus Walz, has ADHD and a Nonverbal learning disability (NVLD) that may affect as many as "2.9 million children and adolescents in North America." While she has since deleted the post, it should go without saying, but it's NEVER right to disparage someone with a disability.

According to this study in the Journal of the American Medical Association Pediatrics (JAMA), NVLD has been a conversation for over 50 years, however, its prevalence and the reasons for it are little known. 

Not only is Gus Walz not weird, but he is endearing. Unsurprisingly, he rocked social media with this viral moment and for many, myself included, one of the brighter, most beautiful displays of love and joy in the entire convention. It brought tears to my eyes and happiness to my soul.

Just seeing Gus made me remember a childhood friend who I'm now thinking had this very disorder long before there was any science on it. He was definitely "neurodivergent." It's cool to know that now we have words for this. 

We knew he had what was called "hyperactivity," which today is called "ADHD" and was possibly misdiagnosed as "autistic." This was decades ago when much less was known but what we all witnessed as Gus' manifestation of exuberance was what we always witnessed with our dear friend who we loved implicitly. It all got him in trouble, though, back in the day. Poor thing as I reflect on it now. He always made the best of whatever came his way regardless so all is good.

Geez, science and research make a big difference in the world, saving lives daily. I am genuinely delighted to see this light shining on NVLD—together with a family's unconditional love and support for their son who has endeared the nation.

-Angela Valenzuela


What is a nonverbal learning disorder? Tim Walz’s son Gus’ condition, explained

Almost 3 million kids in North America have the learning disability NVLD. It affects spatial-visual skills and has nothing to do with speaking abilities.

Tim Walz celebrates with his son, Gus; wife, Gwen; 
and daughter, Hope, on Wednesday in Chicago.Alex Wong / 
Getty Images
 

By 

Gus Walz stole the show Wednesday when his father, Minnesota Gov. Tim Walz, officially accepted the vice presidential nomination on the third night of the Democratic National Convention

The 17-year-old stood up during his father’s speech and said, “That’s my dad,” later adding, “I love you, Dad.”

The governor and his wife, Gwen Walz, revealed in a People interview that their son was diagnosed with nonverbal learning disability as a teenager.

2020 study estimated that as many as 2.9 million children and adolescents in North America have nonverbal learning disability, or NVLD, which affects a person’s spatial-visual skills.

The number of people who receive a diagnosis is likely much smaller than those living with the disability, said Santhosh Girirajan, the T. Ming Chu professor of biochemistry and molecular biology and professor of genomics at Penn State.

“These individuals are very intelligent and articulate well verbally, but they are typically clumsy with motor and spatial coordination,” he told NBC News. “It’s called a learning disorder because there are a lot of cues other than verbal cues that are necessary for us to keep information in our memory."

People with NVLD often struggle with visual-spatial skills, such as reading a map, following directions, identifying mathematical patterns, remembering how to navigate spaces or fitting blocks together. Social situations can also be difficult. 

“Body language and some of the things we think about with day-to-day social norms, they may not be able to catch those,” Girirajan said. 

Unlike other learning disabilities such as dyslexia, signs of the disability typically don't become apparent until adolescence. 

Early in elementary school, learning is focused largely on memorization — learning words or performing straightforward mathematical equations, at which people with NVLD typically excel. Social skills are also more concrete, such as playing a game of tag at recess. 

“But as you get older, there’s a lot more subtlety, like sarcasm, that you have to understand in social interactions, that these kids might not understand,” said Laura Phillips, senior director and senior neuropsychologist of the Learning and Development Center at the Child Mind Institute, a nonprofit organization in New York.

In her own practice, she typically sees adolescents with NVLD, who usually have an average or above average IQ, when school demands more integrated knowledge and executive functioning, such as reading comprehension or integrating learning between subjects. They also usually seek help for something else, usually anxiety or depression, which are common among people with NVLD. 

Sometimes misdiagnosed as autism

Amy Margolis, director of the Environment, Brain, and Behavior Lab at Columbia University, is part of a group of researchers that is beginning to call the disability “developmental visual-spatial disorder” in an effort to better describe how it affects people who have it.

People with NVLD are “very much verbal,” Margolis said, contrary to what the name suggests.

The learning disability is sometimes misdiagnosed as autism spectrum disorder. Margolis led a 2019 study that found that although kids with autism spectrum disorder and NVLD often have overlapping traits, the underlying neurobiology — that is, what’s happening in their brains to cause these traits — is unique between the two conditions.

Margolis is trying to get NVLD recognized by the DSM-5, the handbook health care providers use to diagnose mental health conditions. Without such official recognition, people with NVLD can struggle to get the resources they need, such as special class placements or extra support in school.

“Without an officially recognized diagnosis, it’s hard for parents to understand how to seek information, and then communicate to other people what kinds of things might be challenging for their kid,” Phillips said, adding that widespread awareness is key to helping these families navigate NVLD.

Sunday, June 30, 2024

More infants have died since Texas anti-abortion heartbeat law took effect, study shows

Friends,

Restrictive abortion policies are a very serious matter. Politicians who speak of the sanctity of life don't care to understand that women both understand this and still merit a right to choose. A woman's body is her own sanctity. Moreover, her body ought to be construed as her personal property against which no politician should legislate. In a country where private property is venerated, why isn't a woman's body similarly regarded? Patriarchy is the short answer. Religion and politics combine, as well, in a toxic mix. 

According to the Journal of the American Medical Association, the most authoritative journal of medicine in the U.S., more infants in Texas are dying (Ollstein & Messerly, 2024). The study covered 2021 through 2022 before the Dobbs v. Jackson Women’s Health Organization ruling by the Supreme Court, meaning that the number of infant deaths is likely higher now

Policies that limit pregnant women's ability to terminate them—especially those with late-diagnosed fetal abnormalities—lurk behind this increase in infant mortality. What saddens me is the blunt force of policy resulting in infant deaths due to birth defects and genetics. This results in acute suffering by parents upon witnessing their infants die. 

I have friends who experienced this. She and her husband gave the baby a name and she died shortly after she was born. I witnessed first-hand the profound anguish and suffering they went through watching their baby gasp for her final breaths of life. It was a traumatic experience for them. This all happened years ago and not in the context of Senate Bill 8, Texas' "Heartbeat law" discussed herein. It was nevertheless instructive and ties into the concerns raised here.

Incredibly, SB 8 makes no exceptions for fetal abnormalities, rape, or incest. I can only imagine the anguish today is magnified by the existence of harmful policies and politicians with doctors conveying remorse and sadness out of concern for the precarity so many women face due to policy constraints. Previously, before SB 8, abortion was legal up to 20 weeks of pregnancy. We should return to that and stop using abortion as a political tool.

First, however, we need to vote these folks out of power, period. If we don't, it'll only get worse. While Trump, should he win the presidency, may not call on a total abortion ban, according to this piece in Politico, Trump will likely make it harder to get one. I'm glad that they mention the "Project 2025" blueprint that proposes mandating coverage for natural family planning methods and eliminating the requirement for insurance to cover certain emergency contraception.

I repeat, no one should sit out this election. We all need to vote and get these patriarchs, including patriarchal women, out of power.

-Angela Valenzuela

Reference


Ollstein, A. M. & M. Messerly. (2024, May 29). Infant Deaths After Texas’ 2021 Ban on Abortion in Early Pregnancy, Journal of the American Medical Association Pediatrics.

More infants have died since Texas anti-abortion heartbeat law took effect, study shows


June 26, 2024 | Austin American-Statesman | USA TODAY reporter Eduardo Cuevas contributed to this report.

Despite Texas lawmakers' claims that their heartbeat law saves lives, a new study shows the strict abortion ban may have contributed to an increase in infant deaths.

Infant mortality increased after Texas heartbeat law, new study shows

Findings published in the peer-reviewed Journal of the American Medical Association study Monday reveal an increase in infant deaths after the state's Senate Bill 8 took effect. The study was conducted by researchers at Johns Hopkins University and Michigan State University.

What is the heartbeat law in Texas?

The law, also called the "Texas Heartbeat Act," bans abortion after fetal cardiac activity is detected. This usually occurs after about six weeks of pregnancy.

SB 8 became Texas law Sept. 1, 2021, and less than a year later the U.S. Supreme Court overturned Roe v. Wade, a decision that had protected the constitutional right to abortion. The high court ruling in Dobbs v. Jackson Women’s Health Organization prompted more than a dozen states to issue near-total bans on abortion.

Observers speculate that evidence will also show increases in infant deaths in those states, akin to what Texas has seen, the study led by researchers at Johns Hopkins University said. The Texas bill makes no exceptions for rape, incest or fetal abnormalities, though it does allow abortions in certain medical emergencies. Before SB 8, abortion was legal until 20 weeks into pregnancy.

Anti-abortion laws linked to increase in infant deaths

The JAMA Pediatrics study found that, following Texas' passage of SB 8, more babies died before their first birthday. The deaths were likely due to birth defects or genetic problems not compatible with life, the pregnancies of which would typically have been terminated by abortion, according to researchers. Such conditions are not exempted from SB 8's abortion ban; therefore, mothers are legally obligated by state law to carry the pregnancies to birth.

People are also reading:Texas abortion laws are preventing women from accessing crucial miscarriage care

Such restrictions can prove fatal, according to one of the study's lead authors.

“Our results suggest that restrictive abortion policies that limit pregnant people’s ability to terminate pregnancies, particularly those with fetal abnormalities diagnosed later in pregnancy, may lead to increases in infant mortality,” Suzanne Bell said in a release.

Another author of the study referred to the deaths following Texas' heartbeat law as "spillover effects on moms and babies."

“It just points to some of the devastating consequences of abortion bans that maybe people weren't thinking about when they passed these laws,” Alison Gemmill, an assistant professor at Johns Hopkins University’s Bloomberg School of Public Health, told USA TODAY.



In the JAMA Pediatrics study, Gemmill and researchers wrote that the Texas law was linked to "unexpected increases in infant and neonatal deaths" between 2021 and 2022. Prior research drew a correlation between the uptick in infant deaths and anti-abortion laws taking effect. However, no studies until now have attributed the fatalities directly to the laws prohibiting the termination of these pregnancies.

In 2021 and 2022, the average increase in infant deaths in the U.S., excluding Texas, was 1.8%. In the same time period, infant deaths in Texas rose by 12.9%.

"Abortion care is an essential component of comprehensive healthcare, and when it is restricted, the human impacts are devastating," Wendy Davis, a senior adviser for Planned Parenthood Texas Votes, said in a statement.

Davis, who filibustered for abortion rights when she was a Democratic state senator, noted that the study only covered 2022, not the results in 2023 and 2024 in the wake of a more restrictive abortion ban that came with the Dobbs decision. This "likely means the situation on the ground today is even more dire," Davis said.

More on Texas reproductive rights:Amid Texas abortion ban, Democratic AGs meet in Austin to strategize on reproductive rights


Anti-abortion advocates respond to study's findings

Texas Gov. Greg Abbott's office did not dispute the study's findings but defended the Republican-controlled state's anti-abortion record. This effort included the 2021 heartbeat law "to save the innocent unborn, and now thousands of children have been given a chance at life," Andrew Mahaleris, a spokesperson for Abbott, said in a statement to USA TODAY. He said the governor has taken "significant action to protect the sanctity of life" and offered resources to expectant mothers "so they can choose life for their child."


Anti-abortion advocates also didn't contest the uptick in infant deaths cited in the study. Advocates for the heartbeat law and other legislation to restrict abortions say such bans protect life. They say terminating a fetus with a terminal illness is “choosing to kill that child intentionally.” The overwhelming majority of such abortions happen before the fetus is viable. In Texas, legislation has dramatically reduced the number of abortions performed in the state.

Amy O’Donnell, a spokesperson for Texas Alliance for Life, said the study’s findings didn’t come as a surprise. She said babies born with disabilities and even fatal anomalies deserve a chance at life, even if that means a newborn dies after birth from a condition doctors anticipated would be lethal. The death of a child is not easy, she acknowledged. She noted that her nonprofit offers resources for families grieving from such losses.

“In Texas, we celebrate every unborn child's life saved. We treasure the fact that our laws are protecting women's lives,” she said. “We don't apologize for the fact that we don't support discrimination against children facing disabilities or fatal diagnoses in or out of the womb. And that's the line that we just believe should not be crossed.”

USA TODAY reporter Eduardo Cuevas contributed to this report.